It is important to stay up to date on issues regarding your child’s disability or health issues. I have attended events related to my daughter’s diagnosis and general disability events. I have come away from these events with more knowledge of how to best support my daughter. If you are interested in attending these types of events, many local organizations have grants for families, you can use public funds by including training costs in your child’s individualized care plan, or there are free events sponsored by hospitals and advocacy organizations.
- We can always learn more. Take time not only to listen, but to speak to many people. Whether they are doctors, therapists, or other parents, you can gain valuable understanding from different sources. This will help you grow in knowledge and understanding.
- Caregiving is solitary. By attending classes, workshops, or conferences (whether in person or online) we build our tribe. We find people who understand what we have gone through, who help motivate and encourage, and people who can experience this journey with us.
- Building a network. Events are a wonderful way to hear about support and benefits. It is also an opportunity to meet with professionals to discuss your child and your experiences. You can learn which agencies to contact about benefits.
- Add to your toolbox. With every class, workshop, or conference I’ve ever attended, I’ve come away a little more knowledgeable. I have learned about community services and support, legal issues, and new technology.
- We don’t know what we don’t know. Through attending these events, we not only learn new research but also gain a better understanding of what to expect, therapies to consider, and just exactly what we still need to learn.
- Telling ourselves (and the world) this matters. By investing in our children, we are acknowledging their importance. We say that we are taking this pursuit seriously and are ready to make a difference.
